Happy summer, friends. We’re overdue for an update, and the tests of the month are just now producing information worth reporting. You may recall that, after her CAR T trial, Dea had a pretty big collection of tumors that appeared to be cruising the status quo in her bones, but also a couple new ones that seemed to be emerging in her liver. Those liver lesions were mysterious… Were they independent new tumors? Breast cancer mets? Something else? Resolving those questions was an essential prerequisite to mapping the path forward.
This has been a heavy mystery to carry around through the summer, but it also came with some blessings. The break from chemotherapy, which started back in March, has continued through July. The business of managing complications from so many bone tumors did not stop, but a break from chemo has meant a break from so many side effects. During July Dea watched Ricky “launch” (her word, with signature emphasis) a new chapter with many milestones. New career, new colleagues, new dreams, independence, travel, apartment, and on and on. This was a fast stretch of the parenting river, and that ride has been sweet. Summer has also brought the gift of several invitations to boat with friends. Dea reports that time on the water has been the most delicious a) time in the present and b) connection to childhood. “Definite highlights of July.”
Sadly, the results of July’s liver tumor analyses are disappointing. They do appear to be metastases of her breast cancer, so things are still migrating and growing. Also, a summer spike in circulating ‘cancer markers’ punctuates some of those points. Her docs have proposed that they go back into their bag of chemotherapy tricks ASAP, and Dea has embraced that plan. It is expected that whichever chemo they select, the meds will extinguish the remaining CAR T-cells. And so the see-saw tips. Again. The team has kicked into high gear to select the next chemo, and get it rolling.
As Dea recounts the blessings of this summer to date, her stories get animated when she’s talking about the incredible food people have gifted, the photo memories people have uploaded, and the incredible good fortune of being surrounded by loving friends and family. I suppose you reap what you sow, my friend. You are quite the garden.
Heading back into chemo, I’ve extended the meal train through September, and I encourage everyone to keep the ever-growing photo collection in mind — in case you bump into an old drawer or shoebox full of memories. Dea has mentioned many times that photos from the pre-digital era are particularly fun to see (and thanks to all for shooting/uploading pics of your old prints… It seems all roads still lead to the digital simulacrum).
If you are willing to climb on the September meal train, the extended sign-ups are here.
Dea, here is wishing you all the smiles of August. In a remarkable place, with your remarkable people. The best of summer is yet to come.
Hi Dea! You are a strong and positive woman that inspires everyone. I’m so glad you have so much love around you. Missing you in SB. Lots of love, Julie
Dearest Dea,
Your profound love and courage and such deep compassion for life, family, friendship, is so healing and inspiring and gets me back in touch with my own life with such gratitude. You teach me gratitude, Dea, simply by being who you are. I am so so grateful to know you and your beautiful Ricky and Pete. Sending you tons of healing energy and love, as always. Miss you. Yukiko
As always, sending you healing mana from Mama Maui.
xoxo
Dea, I really appreciate your friend(s) that have put this beautiful deaperry.com together since we are so far away from you. I will try to send some oldies but moldies your way. Big hugs and smooches to you. Susi
My dear friend, You have always been an inspiration to me in so many ways. Your courageous and positive attitude of embracing whatever challenges come your way is among your many attributes.
My love and thoughts are with you always
Lisa L
Good morning Dea. I felt saddened hearing of this recent set back in your therapy, however your indomitable spirit shines through the narrative of your journey, an inspiration to me. I’m so glad to hear that your son is bringing smiles to your heart. Your courage is surely an inspiration to him.
You and how you have lived your life, together with Matt have created a way for the “throngs” of people who truly love you can reach out and touch you. Your name is a blessing ala the song I sent.
Dearest Dea,
A blast from the past of course. Your smile is what I see as I remember you dancing your heart out in the King and I at Flintridge. Your spirit is in that smile, a spirit all of us who have the honor of being part of your life carry. My best to you and Peter and your son as you power through this next challenge.
Love,
Rita
Waiting for the next update, meanwhile thinking of you, with so much love, and good wishes, my beautiful friend.